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The domain of EU-PEARL’s research, Integrated Research Platforms (IRPs) and platform trials is relatively new and consequently the vocabulary is still work in progress.  Hence, the need to develop a common understanding and usage of terminology beyond EU-PEARL. With this goal in mind, D2.1. Report on Terminology, References and Scenarios for Platform Trials and Master...
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As the biomedical sector rapidly mobilizes to address the novel coronavirus pandemic, we are encouraged to see the strong embrace of collaboration, master protocols and platform studies, all in the spirit of delivering the most useful information in the fastest way possible to save lives. The most prominent example is the launch of the adaptive...
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Patient centricity is at the core of EU-PEARL’s mission. That is why we are engaging with patients from the start to co-design the platform trial framework, thus bringing on board more patient-relevant outcomes. Making clinical trials more efficient and patient friendly can ensure that individuals find the clinical trial that matches their needs, that companies...
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Physician, specialised in internal medicine, infectious diseases and epidemiology/public health. EU-PEARL’s scientific co-coordinator, giving support to Dr Joan Genescà. He is part of the VHIR team. How and why did you become involved in EU-PEARL? I have been passionately engaged in research ever since the early stages of my career combining my work as a...
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EU-PEARL will participate in the Children’s Tumor Foundation (CTF) Annual Conference which will take place online next June 15th and 16th. This global forum focuses on building consensus and advancing translational and clinical research to improve outcomes for patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. Every year, this event attracts nearly 500...
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On 29 May, EU PEARL launched a call for testimonials to collect feedback on patient’s experience participating in clinical trials. If you have participated in a clinical trial and have feedback to share, you can write to us in 3-5 sentences about your experience. Your testimonial will be shared on the EU PEARL and EPF...
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EU-PEARL kick-off meeting took place in November 21st and 22nd, 2019. Barcelona welcomed over 120 participants, in representation of EU-PEARL partners, associated collaborators, Innovative Medicines Initiative (IMI2) project officer and European Medicines Agency (EMA) The meeting served the purpose of aligning all members with the project’s objectives, work plan and interdependences which will allow EU-PEARL...
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